We are now waiting arround the lobby. The nurse will call us 3 times with status updates as they proceed. I'll be posting those as they come.
-- Posted from my iPhone
Wednesday, October 21, 2009
In anesthesia
Ella is currently in anesthesia. She is only mildly sedated and will be slowly taken deeper over the next hour or so.
-- Posted from my iPhone
On our way.
We are on our way to the hospital. Assuming pre-op doesn't show she is getting sick, the heart proceedure will be today.
-- Posted from my iPhone
-- Posted from my iPhone
Sunday, October 18, 2009
Surgery on for Weds.
As of this morning Ella is healthy and not sick in any way, so we have begun her pre-op asprin therapy (as directed by her surgeon). Assuming she stays cold-free we'll be on for Weds am.
I am also testing the Iphone app I'll be using to post from the hospital.
-- Posted from my iPhone
I am also testing the Iphone app I'll be using to post from the hospital.
-- Posted from my iPhone
Sunday, September 20, 2009
Surgery delay, potty training, and general updates..
Ok, first, Ella's surgery (that was supposed to go off last Weds) got rescheduled for October. Earlier last week she came down with a cold, and that added unnecessary risk to the surgery. (mostly because they need to put a tube in her throat during the procedure, and that doesn't mix so well with coughs and inflamed throats).
On the progress front, this weekend Ella spent all of her awake time in regular underwear, and had no accidents all weekend! She's actually very happy to be in underwear now, so it looks we're breaking through the PT barrier that the flu put in our way last winter. (we almost had her daytime PTed, but then a flu or flu-like illness struck, and Ella became afraid of underwear.)
On the speech front, Ella continues to chatter babbles at us, and continues to be quite prolific in it. She'll now say "I" and "Hi", although the distinction between the two is blurred. She'll also occasionally form "Doga" for Dog. Her babbles include "Da", "Dooga", "Tka/Tooka", "Ga", "Ra", "P", "Ba", "Ha", along with all (or nearly all...) the vowel sounds.
Anyway, just wanted to get a little news up on the blog, hope you're all well!
On the progress front, this weekend Ella spent all of her awake time in regular underwear, and had no accidents all weekend! She's actually very happy to be in underwear now, so it looks we're breaking through the PT barrier that the flu put in our way last winter. (we almost had her daytime PTed, but then a flu or flu-like illness struck, and Ella became afraid of underwear.)
On the speech front, Ella continues to chatter babbles at us, and continues to be quite prolific in it. She'll now say "I" and "Hi", although the distinction between the two is blurred. She'll also occasionally form "Doga" for Dog. Her babbles include "Da", "Dooga", "Tka/Tooka", "Ga", "Ra", "P", "Ba", "Ha", along with all (or nearly all...) the vowel sounds.
Anyway, just wanted to get a little news up on the blog, hope you're all well!
Friday, September 4, 2009
Oh the many sundry things..
It's been a long time since I've updated how Ella's doing, so here's some quick general bits..
Talking - Ella now occasionally uses a few crudely formed words with purpose. However, she's more inclined to use them as general bables than with any purpose. The most notable exception to this is saying "I" in the middle of signing "may I be excused".
Eating - Ella is doing really good with self feeding, and can now spoon her own cereal out of a bowl. She'll also pick up and bite chunks out of food that she strongly likes, such as fries and nuggets, although less favored foods still need to be cut up for her.
Motor - Ella's gotten pretty good at jumping (over, and over and over again) in-place in little short hops, and getting on and off her tricycle. Her motor is generally doing pretty good, although she is a little bit behind her peers in more ambitious climbing and balance adventures.
School - Ella went back school this past Thursday. She's now in a preschool class instead of a toddler class (higher age group) and is now in a regular early-childhood special ed program, not a MINC (higher development level). The later means that she's not with any of her former classmates, which is unfortunate, but she's doing fine with it.
Potty - Well, we're still working on this one. Ella does pretty well at using the potty, but her enthusiasm for wearing underwear instead of diapers varies wildly (often very resistant to wearing one or the other, usually wanting the exact opposite of what works for the planned day)
Anyway, hope you're all well, I just wanted to get a quick update of how things are going.
Talking - Ella now occasionally uses a few crudely formed words with purpose. However, she's more inclined to use them as general bables than with any purpose. The most notable exception to this is saying "I" in the middle of signing "may I be excused".
Eating - Ella is doing really good with self feeding, and can now spoon her own cereal out of a bowl. She'll also pick up and bite chunks out of food that she strongly likes, such as fries and nuggets, although less favored foods still need to be cut up for her.
Motor - Ella's gotten pretty good at jumping (over, and over and over again) in-place in little short hops, and getting on and off her tricycle. Her motor is generally doing pretty good, although she is a little bit behind her peers in more ambitious climbing and balance adventures.
School - Ella went back school this past Thursday. She's now in a preschool class instead of a toddler class (higher age group) and is now in a regular early-childhood special ed program, not a MINC (higher development level). The later means that she's not with any of her former classmates, which is unfortunate, but she's doing fine with it.
Potty - Well, we're still working on this one. Ella does pretty well at using the potty, but her enthusiasm for wearing underwear instead of diapers varies wildly (often very resistant to wearing one or the other, usually wanting the exact opposite of what works for the planned day)
Anyway, hope you're all well, I just wanted to get a quick update of how things are going.
Thursday, August 13, 2009
Heart procedure - scheduled for Sept.
MentalMother, in a bit of role reversal, posted a very lengthy and detailed description of all this, so to continue the reversal, I'm going to post a brief note.
Ella is now scheduled for a procedure to correct her PDA. As heart procedures go, this is a relatively minor one, and overall is similar to the way they put in stents for heart disease, but this is closing an artery near the heart rather than opening one.
The whole thing will take place as a non-surgical cardiac catheterization type of procedure on September 16th. She will be under general anesthesia for this (good luck getting a 3 year old to lay still on a table for 3 hours, much less while poking around the heart!). During the procedure they will perform some detailed x-rays with contrast enhancers, and decide what size or type of device to place in her heart to close the ductus. If the ductus is small enough, they will use an embolyzation coil to close it, in which case she will likely go home late the same day as an outpatient. If it is larger they will use an Amplatzer duct occluder, in which case she will say overnight for observation. (note: neat videos on the Amplatzer).
Either way she should be back in action after a couple of days.
Overall, it's good news for us that we can use the catheter procedure, as this eliminates the potential need for conventional heart surgery.
Ella is now scheduled for a procedure to correct her PDA. As heart procedures go, this is a relatively minor one, and overall is similar to the way they put in stents for heart disease, but this is closing an artery near the heart rather than opening one.
The whole thing will take place as a non-surgical cardiac catheterization type of procedure on September 16th. She will be under general anesthesia for this (good luck getting a 3 year old to lay still on a table for 3 hours, much less while poking around the heart!). During the procedure they will perform some detailed x-rays with contrast enhancers, and decide what size or type of device to place in her heart to close the ductus. If the ductus is small enough, they will use an embolyzation coil to close it, in which case she will likely go home late the same day as an outpatient. If it is larger they will use an Amplatzer duct occluder, in which case she will say overnight for observation. (note: neat videos on the Amplatzer).
Either way she should be back in action after a couple of days.
Overall, it's good news for us that we can use the catheter procedure, as this eliminates the potential need for conventional heart surgery.
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